Estrategias psicopedagógicas para el desarrollo de la autonomía en los jóvenes con Síndrome de Down

Roxana Annabelle Teran Valverde; Sara Nila Yagual Rivera

doi:10.56200/mentor.v5i4.13061

Authors

Roxana Annabelle Teran Valverde Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador
Sara Nila Yagual Rivera Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador

DOI:

https://doi.org/10.56200/mentor.v5i4.13061

Keywords:

Psychoeducational strategies, empowerment, personal autonomy, Down syndrome

Abstract

Globally, individuals with Down syndrome demonstrate a lifelong dependence on their families for personal, social, and educational development due to a lack of training programs. This study aimed to analyze the needs, limitations, and psychoeducational strategies used by caregivers of young people with Down syndrome in the province of Santa Elena to inform the design of a proposal focused on strengthening personal and social autonomy. The study employed a pragmatic paradigm and a sequential explanatory mixed-methods approach, with a non-experimental, descriptive, cross-sectional design. A diagnostic survey was administered to 56 caregivers, and the results showed that 100% expressed a need for training on strategies; these results served as the basis for the design of the qualitative phase. The findings from the interviews, analyzed through thematic analysis in Atlas.ti, revealed that autonomy has achieved significant progress within the home, while remaining limited in the social and educational spheres. The study concludes that there is a gap in training, which supports the need to design psycho-pedagogical strategies aimed at caregivers, with this diagnosis serving as empirical support for future research.

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Author Biographies

Roxana Annabelle Teran Valverde, Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador

Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador

Sara Nila Yagual Rivera, Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador

Universidad Estatal Península de Santa Elena, Santa Elena-Ecuador

References

Ainscow, M. (2020). Promoting inclusion and equity in education: lessons from international experiences. Nordic Journal of Studies in Educational Policy, 6, 7-16. https://doi.org/10.1080/20020317.2020.1729587

Archibald, M., Ambagtsheer, R., Casey, M., & Lawless, M. (2019). Using Zoom Videoconferencing for Qualitative Data Collection: Perceptions and Experiences of Researchers and Participants. International Journal of Qualitative Methods, 18. https://doi.org/10.1177/1609406919874596

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. https://doi.org/10.1191/1478088706qp063oa

Burbano Carrión, A. (2025). Uso de pictogramas para el desarrollo del lenguaje expresivo en niños de 5 a 7 años pertenecientes a la Asodown Loja, 2024. [Trabajo de titulación], Universidad Nacional de Loja. https://dspace.unl.edu.ec/items/e08237e8-0f6e-4afe-8ca1-ab9d2171a319

Cerrón, M., Mayer, F., Arantes-Costa, F., & Tempski, P. (2021). The development of autonomy among adolescents with Down syndrome based on the pedagogy of Paulo Freire. Ciência & Saúde Coletiva, 26, 3019-3030. https://doi.org/10.1590/1413-81232021268.09322020

Chapalbay Bravo, N. (2025). Lectura pictográfica y comunicación oral en estudiantes con Síndrome de Down en preparatoria en la Unidad Educativa "Alfredo Cisneros". [Tesis de maestría], Universidad Nacional de Chimborazo. http://dspace.unach.edu.ec/bitstream/51000/14908/1/Chapalbay%20Bravo%2C%20Mar%C3%ADa%20L.%20%282025%29%20%20Lectura%20pictogr%C3%A1fica%20y%20comunicaci%C3%B3n%20oral%20en%20estudiantes%20con.pdf

Chapman, R. (2003). Language and Communication in Individuals with Down Syndrome. International Review of Research in Mental Retardation, 27, 1-34. https://doi.org/10.1016/S0074-7750(03)27001-4

De-La-Garza, E., Scott, A., Hillerstrom, H., Hendrix, J., & Rubenstein, E. (2023). Caregivers' concerns and supports needed to care for adults with Down syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 196. https://doi.org/10.1002/ajmg.c.32041

Escobar, J., & Martínez, A. (2008). Validez de contenido y juicio de expertos: Una aproximación a su utilización. https://www.researchgate.net/publication/302438451_Validez_de_contenido_y_juicio_de_expertos_Una_aproximacion_a_su_utilizacion

Ivankova, N., Creswell, J., & Stick, S. (2006). Using Mixed-Methods Sequential Explanatory Design: From Theory to Practice. Field Methods, 18, 3-20. https://doi.org/10.1177/1525822X05282260

Krell, K., Haugen, K., Torres, A., & Santoro, S. (2021). Description of Daily Living Skills and Independence: A Cohort from a Multidisciplinary Down Syndrome Clinic. Brain Sciences, 11, 1012. https://doi.org/10.3390/brainsci11081012

Laica-Mullo, Y. (2023). Calidad de vida en los cuidadores de personas con Síndrome de Down. Revista Científica Arbitrada Multidisciplinaria PENTACIENCIAS, 5, 510-519. https://doi.org/10.59169/pentaciencias.v5i4.689

Mas, J., Dunst, C., Balcells-Balcells, A., Garcia-Ventura, S., Giné, C., & Cañadas, M. (2019). Family-centered practices and the parental well-being of young children with disabilities and developmental delay. Research in Developmental Disabilities, 94, 103495. https://doi.org/10.1016/j.ridd.2019.103495

Moraleda-Sepúlveda, E., López-Resa, P., Pulido-García, N., Delgado-Matute, S., & Simón-Medina, N. (2022). Language Intervention in Down Syndrome: A Systematic Literature Review. International Journal of Environmental Research and Public Health, 19, 6043. https://doi.org/10.3390/ijerph19106043

Muñoz-Llerena, A., Ladrón-de-Guevara, L., Medina-Rebollo, D., & Alcaraz-Rodríguez, V. (2024). Impact of Physical Activity on Autonomy and Quality of Life in Individuals with Down Syndrome: A Systematic Review. Healthcare, 12, 181. https://doi.org/10.3390/healthcare12020181

Patton, M. Q. (2002). Qualitative research & evaluation methods (3rd ed.). Thousand Oaks, CA.

Redondo, J. A., Kerguelen-Soto, J., Diaz-Bernal, J., Barón-Vergara, M., Otero-Ricardo, S., & Ramos-Florez, V. (2025). Barreras y oportunidades en la inclusión de personas con discapacidad intelectual. Revista Latinoamericana de Calidad Educativa, 2, 55-61. https://doi.org/10.70625/rlce/225

Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23, 334-340. https://doi.org/10.1002/1098-240x(200008)23:4<334::aid-nur9>3.0.co;2-g

Schalock, R., Keith, K., Verdugo, M., & Gómez, L. (2010). Quality of Life Model Development and Use in the Field of Intellectual Disability. Social Indicators Research Series, 17-32. https://doi.org/10.1007/978-90-481-9650-0_2

Simón, C., Giné, C., & Echeita, G. (2016). Escuela, Familia y Comunidad: Construyendo Alianzas para Promover la Inclusión. Revista latinoamericana de educación inclusiva, 10, 25-42. https://doi.org/10.4067/S0718-73782016000100003

Swift, A. (2022). Being Creative with Resources in Qualitative Research. The SAGE https://doi.org/10.4135/9781529770278.n19

Vásquez, A. P. (2025). Estrategias psicopedagógicas para fortalecer la autonomía en estudiantes con discapacidad intelectual. [Tesis de maestría]. Universidad Estatal Península de Santa Elena. https://repositorio.upse.edu.ec/items/edd6ecdd-bcd2-4f9d-84e9-5be1714b01f8

Yagual, E. L. (2021). Autonomía funcional en las personas con discapacidad intelectual. Caso: Proyecto para personas con discapacidad, comuna San Pedro. U. E. [Trabajo de titulación] UPSE. https://repositorio.upse.edu.ec/server/api/core/bitstreams/c2517f9c-cdd3-4416-927d-502f8b6d4b39/content